Grants & Giving
Serving the rare disease community through corporate giving programs
Giving: A Core Part of Our Mission
Serving the rare disease community goes beyond developing precision genetic medicines. Sarepta is committed to providing support at every stage of a patient’s journey. Our partnerships with patient advocacy groups are fundamental to this work.
We provide grants, donations, medical education support, and sponsorships to advocacy groups, nonprofit organizations, academic institutions, scientific and medical associations, continuing medical education providers, and other organizations across the spectrum of neuromuscular and rare diseases, with priority assigned to Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and other disease areas of focus for the company.
Grants & Donations
Sarepta provides grant funding for programs that enable education, address unmet needs of rare disease patients, promote the highest standards of care, raise awareness of ongoing research, or focus on other critical community initiatives.
Requests will be considered across the spectrum of neuromuscular and rare diseases, with priority assigned to Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and other disease areas of focus for the company. Applications are accepted on a rolling basis and are generally reviewed monthly by the committee. Our team will review your request and contact you within 90 days of your submission. Requests considered may include those that support:
- the communities Sarepta serves globally
- programs and activities that seek to advance medical and disease education, and that address the unmet needs of patients
- charitable causes and events that are of importance to the communities we serve
- collaborative learning experiences through engagement with various stakeholders from the Duchenne community
- programs that target a broad population of patients
Requests that typically cannot be supported may include:
- funds that will benefit an individual or specific subset of the disease community
- proposals for support of general education or programs if one of Sarepta’s disease areas of focus are not highlighted
- programs that duplicate efforts that are actively ongoing in the community or that Sarepta has already supported
If you have any questions about grants or sponsorships, please contact: [email protected].
Sponsorships
Sarepta sponsors programs and events that support, raise awareness, and advance education and scientific knowledge around rare diseases and the experience of patients living with those diseases.
Sarepta’s funding priorities include support programs that focus on neuromuscular and rare disorders, with priority on Duchenne muscular dystrophy and limb-girdle muscular dystrophy. Applications are accepted on a rolling basis throughout the year and are generally reviewed monthly by the committee. Our team will review your request and contact you within 90 days of your submission.
How to apply:
Sponsorship applications must include a list of the benefits for each funding level.
If you have any questions about grants or sponsorships, please contact [email protected].
Fellowships
We are committed to developing precision genetic medicines aimed to improve and extend the lives of patients with rare genetic-based diseases. We know we can’t accomplish this mission alone.
Our funding opportunities aim to provide support to those who will be working urgently in this fight.
Sarepta’s Annual Grant Program for Neuromuscular Fellowships is available to institutions in the United States that are interested in 1-year funding to support a Genetic Counselor, Physician, Nurse Practitioner, or Physical Therapist Fellow.
How to apply:
If you have any questions about fellowships, please contact: [email protected].
Medical Education Grants
Sarepta is dedicated to supporting high quality independent medical education programs that align with our strategic focus in areas with unmet medical need, and with a priority placed on Duchenne muscular dystrophy (DMD) and Limb Girdle muscular dystrophy (LGMD). We look for programs aimed at improving diagnosis and disease management and, ultimately, patient outcomes. Grants supporting conferences, seminars, and meetings may be awarded to academic medical centers, medical education companies and medical specialty societies.
Sarepta’s application cycle for 2025 requests will open July 15, 2024 – November 15, 2024. Applications will be batch reviewed when the window has closed, and final decisions will be distributed in January of 2025.
If you have any questions about grants or sponsorships, please contact: [email protected].
Route 79, The Duchenne Scholarship Program
Route 79, The Duchenne Scholarship Program is designed to help students diagnosed with Duchenne muscular dystrophy pursue their post-high school educational goals.
There are 79 exons in the dystrophin gene impacted by Duchenne, and the route traveled by every person with Duchenne is distinct. Sarepta’s goal through this program is to acknowledge and support individuals with Duchenne who are mapping out their future via educational pursuits.
Additional information is available here.
LGMD Grant Award Program
The path to a diagnosis of limb-girdle muscular dystrophy (LGMD) can be long and involve years of frustrating experiences. Many people living with LGMD are assigned a diagnosis of LGMD based on their symptoms, have not been offered genetic testing, or have a need for updated genetic testing.
The LGMD Grant Award Program is an effort aimed at shortening the LGMD diagnostic journey and/or enhance participation in existing genetic testing programs.
Additional information is available here.